This is a story about Patience, a severely disabled woman. Her mother (Louise) wants her to be part of a phase one clinical trial and her father (Pete) does not want his daughter to experiment on.

It's a tough book because I don't know what I would do.

Because of Patience's disability (Retts) she can not communicate and no one actually talks to her, just about her.

Louise doesn't think no is even an option and is expecting a miracle. She talks as if her daughter is going to wake up talking and walking and no ever disputes that as being completely ridiculous and I don't understand why. Maybe if someone flat out told her that wouldn't happen she wouldn't be so on board with it. Even if the drug did work she would need so much therapy for any changes like that.

Pete does not want this for his daughter when the risks include depression, brain surgery, and even death. Patience seems happy and content in her own little world. However if anybody would have pointed out to him the life expectancy of someone with Retts, he might have changed his mind. It says in the book that life expectancy is 30-40 and Patience is 30. What if this drug can give her more time?

It's an impossible decision. I'm not looking to sign up for clinical trials myself so I guess I have my answer.