"I'm pretty close to positive that no one with a disabilty wants to be pitied. Not a one of us wishes to be looked down upon, or as though our experience of being a person is in any way less than that of an abled bodied person."

"I choose to find the good, and embrace the changes with grace when I can."

"It's the things we usually take for granted that are the tasks I have to work for."

I absolutely get behind "use it or lose it". There are so many things that I used to be able to do but I got lazy and found an easier way and now I can't even remember how I use to be able to do it. And there are other things that I do that I know I only still have the ability because I'm using those muscles all the time.

Last time I went to physio they told me they don't say that anymore. Now they think that you should keep what have in the bank and only use it when totally needed. I'm sorry but that is just wrong.

I feel like she really just skimmed through how hard and expensive adaptive equipment is and how inaccessible it is to so many people. She seemed kind of careless to. She talks about leaving her very expensive wheelchair out in a very public place and is surprised when it's stolen. News flash. People suck.

Something that also shocked me is that she drives. I understand that everyone has different capabilities and progression can be dramatically different for everyone. I just honestly did not know people with FA could drive. I never have and can not imagine doing so. However she did talk about how difficult it was just trying to handle a fork during dinner and than in the next paragraph she talks about driving her son to school. Is driving with FA safe?